HAPPY
1ST
BIRTHDAY DOUNYA!!!!!!!!!!!
WE ARE ALL SO PROUD OF YOU...
Sunday, 16 August 2009
Thursday, 2 July 2009
Great cardiac appointment !!
Last Tuesday 30 June Dounya had her cardiac appointment in the Clark clinic and it went really well. Miss Curiosity was brilliant,lying very still but watching every singls move made..
They are very pleased with her: the leakage hasn't increased and her weight gaining and growth is very well! Next appointment in 6 months time woohoo!!
So the ferries are booked and coming Monday we will be off to Morocco, so my in laws can finally meet our amazing little lady!
We go by car as we usually do, so the holiday starts as soon as we leave already LOL
CHD-NI is growing..we have now a Constitution, 6 committee members in total and 3 fundraising events coming up...so busy enough with all that but I go with a light heart because I know CHD-NI will be well looked after!!
So if you don't hear from me coming month you know where we are!!
They are very pleased with her: the leakage hasn't increased and her weight gaining and growth is very well! Next appointment in 6 months time woohoo!!
So the ferries are booked and coming Monday we will be off to Morocco, so my in laws can finally meet our amazing little lady!
We go by car as we usually do, so the holiday starts as soon as we leave already LOL
CHD-NI is growing..we have now a Constitution, 6 committee members in total and 3 fundraising events coming up...so busy enough with all that but I go with a light heart because I know CHD-NI will be well looked after!!
So if you don't hear from me coming month you know where we are!!
Friday, 19 June 2009
Well the interview with UTV has been cancelled now twice and just got news that they will have an interview with one of the cardiologist early July and then will come to me....BUT WE WILL BE OFF ON HOLIDAY THEN ....hopefully we can set a date after I return!
Dounya has her cardiac app. on the 30th of June so fingers crossed all is well. She is doing great still and can sit up now eat along with us mostly and is a very happy and curious baby. So my feeling is that I don't need to worry, but somehow I always do.
CHD-NI is growing and I get more and more help with things which is great! There are fundraising events coming up in Portadown and Belfast to raise money for the Clark clinic. You can read all about that on the CHD-NI website and on the Clark clinic group on Facebook
Dounya has her cardiac app. on the 30th of June so fingers crossed all is well. She is doing great still and can sit up now eat along with us mostly and is a very happy and curious baby. So my feeling is that I don't need to worry, but somehow I always do.
CHD-NI is growing and I get more and more help with things which is great! There are fundraising events coming up in Portadown and Belfast to raise money for the Clark clinic. You can read all about that on the CHD-NI website and on the Clark clinic group on Facebook
Saturday, 2 May 2009
Heart2Hearts
Been busy with the CHD-NI site and have replaced the original forum with Heart2Hearts a social network where everyone affected by CHD can join and share their experiences, put photos, videos, blogs etc.
http://www.heart2hearts.ning.com
On the part of raising awareness there is positive news. Will have an interview with UTV next week about it and they will use it to get the attention for CHD awareness week 9-17 May.
Really happy with that although I am not so sure about being on TV...hope I will not start to stutter and can get the message across properly.
http://www.heart2hearts.ning.com
On the part of raising awareness there is positive news. Will have an interview with UTV next week about it and they will use it to get the attention for CHD awareness week 9-17 May.
Really happy with that although I am not so sure about being on TV...hope I will not start to stutter and can get the message across properly.
Sunday, 19 April 2009
join hands..
Sandra Kay from Matters of the Heart and Angelina's friends:
''Just some food for thought.... it took over a year to have 16500 people who signed my petition. Everywhere I turn I hear," We need more Awareness out". I do think there are so many many more people who are affected by CHD in some ways than that right ? I need them to care and have 2 minutes of their time to sign and spread the word. Otherwise I can't step in front of the Media and show them how much Awareness is needed. I can't step in front of them with "only" a bit over 16.000 signatures and tell them this public awareness is so needed. I had a reporter of a newspaper say these words to me : If a petition that urges to save polaroid film raises more signatures in a month than you do in six, how can this cause be so important?Need I say more ? Friends we need to join hands in order to make this happen. None of us can do this alone. We need to act as one community to make this happen.Thank you''
SO PLEASE SIGN AND PASS IT ON TO EVERYONE YOU KNOW!!!
http://www.gopetition.com/petitions/media-awareness-for-chd.html
''Just some food for thought.... it took over a year to have 16500 people who signed my petition. Everywhere I turn I hear," We need more Awareness out". I do think there are so many many more people who are affected by CHD in some ways than that right ? I need them to care and have 2 minutes of their time to sign and spread the word. Otherwise I can't step in front of the Media and show them how much Awareness is needed. I can't step in front of them with "only" a bit over 16.000 signatures and tell them this public awareness is so needed. I had a reporter of a newspaper say these words to me : If a petition that urges to save polaroid film raises more signatures in a month than you do in six, how can this cause be so important?Need I say more ? Friends we need to join hands in order to make this happen. None of us can do this alone. We need to act as one community to make this happen.Thank you''
SO PLEASE SIGN AND PASS IT ON TO EVERYONE YOU KNOW!!!
http://www.gopetition.com/petitions/media-awareness-for-chd.html
Wednesday, 15 April 2009
Monday, 13 April 2009
Miss Dounya
Some pics taken just a couple of days ago.Overall she is doing fine, just I noticed the last couple of days that she makes a strange sound when she is breathing in her sleep, which she did not do before. Hopefully it's just a stuffed nose or something like that but I am keeping a close eye and if it doesn't go I will go to see the GP this week.
Easter was great fun...we baked some buns with the kids, did an egg hunt and went to Peatlands park were they had a spring event with all kind of activities. The kids loved it !!
Luckily the weather was kind to us and there was plenty of sunshine . Of course the grown ups were exhausted afterwards but the kids .....how can they have so much energy????I want to know the secret because I can use some!!
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